Scott Daniel Smith, 41, of Leawood, lost his fierce, two-year battle with ALS on Dec. 8, with his wife, Jamie Wolverton Smith, and parents, Mark and Bunny Smith of Lawrence, at his side. Scott is also survived by his two children, Iris Lauren, 3, and Hope Danielle, 1, of the home, and a brother, Drew Smith, of Mission. He was preceded in death by an infant sister, Lauren Diane.
Scott was born July 4, 1981, in Lawrence, where he attended Deerfield Elementary, West Junior High and Free State High schools and was confirmed at Plymouth Congregational UCC. He played football, ran track and wrestled for FSHS (Class of 2000), earning a scholarship to wrestle for Truman State University, where he also played Division II football and graduated magna cum laude with a degree in exercise science in 2005.
Scott’s deep love of singing and songwriting next took him to Saint Louis to perform and record with his band, Full Day Affair, as well as for a project he developed and named Loft 9 Records. He continued to perform solo and open for other artists when he returned to the Kansas City area but eventually turned his focus to building his successful personal training and fitness business, BodySmith KC.
Scott’s next success story was marriage and fatherhood, which was what sustained him after receiving the devastating diagnosis of ALS in late 2020. He became a warrior in the fight to beat this neurodegenerative disease, using his writing skills to publish a brutally honest and widely read journal of its progression to his blog, flexonals.com. Through this and other online channels, he also managed to raise thousands of dollars for ALS research. His participation in a promising research drug trial even as his symptoms worsened cements his hero status, as it provides hope for effective treatment and a possible cure for future sufferers.
Scott had a talent for making and keeping fast and loyal friendships, many of them lifelong and many others through his wife, Jamie, as well as for endearing himself to a very large family of aunts, uncles, cousins and in-laws. They have been unfailing in their support of Scott and his family throughout his ordeal.
Following a private burial, a memorial service will be held at 2 p.m. Saturday, Jan. 7, 2023 at Colonial Church in Prairie Village, 7039 Mission Rd. Prairie Village, Kansas. 66208. A reception will be held following the service at Gravity Restaurant in the Shops at Prairie Village 4160 W 71st St, Prairie Village, KS 66208. There is parking in the former Macys parking lot in Prairie Village Shopping Center, that is between the church and the reception venue.
A recorded video of the service is available at
Service Video (8min): https://vimeo.com/786790594/d44c2cfb18
A trust has been set up to honor Scott and the family respectfully requests that any memorial gifts be made by sending checks payable to:
“Jamie Smith/Iris & Hope Smith College Fund,” mailed to:
Morgan Stanley
Attn: John Ludwig
4520 Main St. 8th Floor
Kansas City, MO 64111
Assistance by Funeral Advocates, LLC.
We had yet to share our deep sorrow at the passing of your beloved Scott. The words fail me……still. We only met him at your beautiful wedding and yet, felt a great connection to you both. We carried him in our hearts as we read anything he wrote and always cried knowing how much we wanted to help but couldn’t. God bless you and your precious girls and know our hearts are heavy as we grieve your great loss. May his memory be eternal…….🙏
Are there other ways to support the trust for international friends from overseas?
Will there be a streaming possibility for the memorial service?
So very sad and taken too soon. I spoke to him briefly on Instagram. I followed him because I have PLS. I was shocked to learn of his passing. 💔🙏🏻🙏🏻
Greatest hero I have every known
What a beautiful tribute to your wonderful son. May God and your faith help your family through the days and years ahead of you. ✝️
My condolences to Jamie and the girls. ❤️
Scott is an inspiration and will continue to inspire others. There are no words to express my sadness for all of you. I believe Scott will always be loving his family from Heaven. May he rest in peace as he so deserves.
Scott was always a source of positivity for those around him, encouraging people to be their best selves. He modeled his values for others to inspire change, gratitude, and hope. Sending love to his family. He is a light lost too soon, never to be forgotten.
I don’t know anyone whose story has touched me so deeply; whose writing spoke so profoundly and, whose life ended much too soon. I literally will never forget Scott and never stop praying for the family.
Jamie and family, I am so sorry that you have to go through this horrible pain. I pray that you have the peace that surpasses all understanding.